Zachary's current medical situation is highly challenged and precarious
Good Morning Team Zachary,
Zachary's current medical situation is highly challenged and precarious as he remains in a struggle to survive the stem cell transplant and the Graft-Versus-Host Disease.
His digestive system remains very compromised from the past six weeks of this process. The challenge of the hour is located in the immense fluid accumulation that makes him look like the Michelin Man in every part of his body from the constant infusions he has been since having been re-admitted to the hospital on April 1st. His body is currently a massive chemistry experiment in balancing high doses of steroids, insulin, anti-rejection drugs, anti-cancer drugs, blood and platelet infusions, nutrients, antibiotics and all of his many 'normal' medications. This fluid retention has left him currently immobile and confined to his bed.
Of greatest current concern is the presence of fluid in his lungs.
To remedy this, Zachary is receiving oxygen and yesterday evening was placed on dialysis with the intent of giving him some relief by removing fluids from his blood. This is not a straightforward process, and the interdisciplinary team at the University of Nebraska Medical Center is working diligently to keep him alive. I will keep you posted.
Journaling
Last night I cried. And then I cried some more and when I was done I started crying again. I cried for me and for Dara and Zachary and that they keep coming up with more ways to torture my sweet boy. I cried because I just don't see what he could have done differently while staying true to himself. We knew this was going to be hell but oh my ... And I cried watching my wonderful husband who had spent the last 15 days with him join me in the place of tears thinking about his boy's body and all that it had endured. And the heart-wrenching-ness of not being able to do anything but just watch and know that not only is he suffering but that we signed up for this.
My niece saved $193 for Team Zachary. She handed it to me in a big stack of crumpled ones and fives and tens and twenties. She didn't really know how much there was in the pile she handed me. I wanted so much to give some back to her. "No, I don't need all your money, sweetheart." But her mother stopped me with a stare.
Later her mother and I talked about the need for my niece to feel as though she was doing everything she could to help Zachary. My heart broke. I know how she feels. It's not as though she thinks that she can buy Zachary's safety, just that she has to live with herself. I understand and respect that. I share her want. The story is not about the money. The story is about how each of us lives our lives to the best of our ability so at the end of the day we rest peacefully with our heads on our pillows. I don't drop what I'm doing in Bloomington and go to Omaha because I think I am actually going to influence the outcome of this story. I do it because no matter what unfolds I have to live with me.
And then there has been the outpouring of help in Zachary's request to help him help others. I didn't think people really read these letters to be honest or maybe I would have stopped long ago just because no one can do someone else's story justice and certainly I can't with Zachary's. We have received 96 different donations from people. NINETY SIX! Many of you I know and many of you I don't know. It's a toss up as to which one touches my heart the most.
With our matching dollars we are up to $84,430. Zachary and I discuss our progress every time I talk with him, so if you feel inclined to Help Zachary Help Others please send your check payable to the University of Nebraska Foundation to Ann St. John, 210 E. Gilbert Dr., Bloomington IN 47408.
Or you can go to www.nufoundation.org/teamzachary to give by credit card. All donations are tax deductable. In the month of April our family will match your gift dollar for dollar. But Wait!! There's More!!! If you give in April, you will receive a darling post card with nine pictures of Zachary--and our thanks ... everybody needs one of those!
These lyrics just came to me in a dream. Maybe I'll put the words to a song--they're pretty good. See what you think......
Imagine there's no cancer
It's easy if you try...
You may say I'm a dreamer
But I'm not the only one I hope someday you'll join us
And the world will be as one
Love,
Ann
Posted in: Letters from the final months
Zachary May
Read more about Zachary and his story from those closest to him, his family and friends.
Meet the Team
Meet the friends and family who keep Zachary's memory and his dream of eliminating lymphoma alive.
Zach's Wish
There was no question in Zachary’s mind that his purpose in life was to be used as a tool, as an instrument for good. Even as things were really becoming dire he never forgot that his life was about expenditure. His desire never waned—I want to help others.
Join Us
Please join Team Zachary and help us spread the word about this deadly disease. Increased awareness means more involvement and increased funding. Increased funding means a cure and life for someone facing death. It's as simple as that.


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